Archive for April, 2011

Nystagmus – August’s eyes Part II

April 25, 2011

Brent and I took August to the Academy of Sciences yesterday (a ritual in our house on Sundays) and when I looked around the Academy I saw a child with Down Syndrome, another child who couldn’t be much older than two wearing very thick glasses, and a father carrying his baby who had some sort of uncontrollable tic that made his head jerk every thirty seconds.  When I see things like this, I think to myself how insignificant wearing a patch or having Nystagmus really is.  August is a very happy baby and has been developing perfectly even a little ahead in some cases, and that’s really all that matters at this point.

Where we left off in Part I was discovering that we had to patch August every day for an hour and a half and come back every 2-3 months for check ups.  What the doctor didn’t tell us is how you get a 14 month old to keep an eye patch on for that long.  The first day of eye patching came, and since it was a weekday Brent had to take care of it while I went off to work.  The first few attempts failed, but then Brent took the tactic of quickly putting the eye patch on him and then immediately distracting him by going outside, or riding his bike.  It worked!  I, of course, deemed Brent “Dad of the year”, and was thrilled to know it was not as big a deal as we had feared.  Brent used this tactic every day until eventually we didn’t have to anymore.  Some days August minds it and squirms a bit, and other days he  reminds us to put it on him.  (more…)

Nystagmus – August’s eyes

April 22, 2011

I notice myself sighing even just thinking about this entry. I used to have this thing with my diaries – it wasn’t real until I wrote it down in my diaries. Which for me meant, if some guy broke my heart and broke up with me, I didn’t write about it in my diaries until I was ready to admit it was over. Writing about August and his Nystagmus feels the same – like some guy just broke my heart. But I guess the good news is, that since I’ve decided to share it with you, I must be ready to admit that it is our reality.

August was born with what currently has been diagnosed as “Congenital Idiopathic Nystagmus”. A lot of very long words to simply mean, he was born with what’s called Nystagmus and they don’t know what the cause is. The American Nystagmus Network defines Nystagmus as “…an involuntary eye movement which usually results in some degree of visual loss. The degree and direction of eye movement, amount of visual loss and resulting impairment varies greatly from person to person…”. Again, to simplify, it means August’s eyes shift back and forth and always have. I noticed it for the first time around 3 months old, maybe even sooner. His eyes never stopped moving back and forth, and since I knew NOTHING about babies, I convinced myself that this was normal. The next thing I noticed was that he never looked me in the eyes, he always looked at my forehead. But we were going to our regular check ups, he was meeting all his milestones, and our pediatrician never said a word.
(more…)

Versatile Blogger Award

April 14, 2011

I would like to thank Don’t Mess With Mama for giving me the Versatile Blogger Award.  One of the biggest compliments you can receive is praise from a fellow Blogger.  So, thank you very much, it really means a lot.

However, I couldn’t seem to figure out what this is, what it means, or where it originated.  Yesterday, I tried to track this award down by going back through the list of nominations to try to find its’ origins, but to no avail.  One interesting thing I did find, however, is that everyone seemed to receive it in the week of April 7th, 2011.  Fascinating.  At this point, I’m dying to know who created this award and what does it mean?  I’m assuming , based on the title, the award is meant for bloggers that have somewhat diverse writing – meaning they don’t just write about the same topics over and over. Although this is extremely flattering that people out there find my blog somewhat unique and interesting, I have to admit I question that validity of it.  But you know what they say, “Don’t kick a gift horse in the mouth”. ( Is that what they say? I always get those phrases mixed up – but that’s for another blog entirely.)  Therefore, I will just accept this award for what it is and just be grateful to Don’t Mess with Mama for nominating me. (more…)

Let’s talk about sex, baby

April 12, 2011

Is it too soon to have a sex talk with August?  Do you think 20 months is too young?  Probably. Although he does seem to understand 90% of what I’m saying, I’m pretty sure that a sex talk would blow his little mind.  Yesterday, August and I took a bath together. We were having a lovely time chatting and playing in the tub with his cups, whistles and rubber duckies.  However, then he turned around and poked my nipple.  That poke quickly turned into a pinch.  He was convinced it was my “Bee Bo”.  (In case you don’t know what a “Bee Bo” is, it’s what Sandra Boynton calls a belly button in her books).  I started by telling him it was not my “Bee Bo” but my nipple.  (more…)

My entry into iWorld

April 1, 2011

Yesterday, I walked into my office with my new iPhone waiting for me on my chair.  I admit I was quite excited and my inital reaction to it was, “Wow it’s so sleek!”.  It all went downhill after that.  For the next 8-9 hours I tried to figure out how to turn the damn thing on; I swear I pushed every single button.  Nothing.  I texted Brent and told him that I guess if I can’t even figure out how to turn the iPhone on, maybe I’m just not an I-world kinda person.  His response was, “Try charging it.” This is something that really drives me crazy.  Why is it when we receive new cell phones, and apparently new I-Phones we have to charge them first?  Is it because they won’t hold a charge until the time of purchase if the company charges them for us?  Or is it simply because the companies are too lazy, and can’t do this for us?  Seriously, it’s annoying, I can’t even use my new toys until I take them home and charge them first? (more…)


Follow

Get every new post delivered to your Inbox.

Join 46 other followers